CharityManchester charity helping people with rare genetic condition to receive key donation

Manchester charity helping people with rare genetic condition to receive key donation

A total of £1,548 has been raised to support a vital health charity in Greater Manchester.

Worsley-based charity Cure Usher Syndrome will receive the contribution from global language and translation service provider LanguageLine Solutions, following a gruelling month-long ‘100 Miles in May’ fitness challenge.

The charity offers vital research funding, awareness, and support for those affected by Usher syndrome – a rare genetic condition that causes dual sensory loss of both hearing and vision, affecting between 4 and 17 people per 100,000 worldwide.

The funds raised will help fuel pioneering clinical research and gene therapy, moving the scientific community closer to finding a cure for Usher syndrome, as well as supporting people with the rare condition and their families.

LanguageLine’s ‘100 Miles in May’ fitness challenge saw more than 20 colleagues across the UK and Europe push their physical limits. Participants committed to either cycling 250 miles or walking and running 100 miles throughout the month.

As a business dedicated to breaking down communication barriers, LanguageLine selected the Greater Manchester charity as its core cause to support throughout 2026.

The challenge saw staff tallying up miles across city canals, rural trails, coastal paths, and even holiday destinations – including scenic walks in Barcelona and a trek up the Lindos Acropolis.

Welcoming the boost to the region, Katie Hampson, Marketing Content Manager at LanguageLine Solutions UK, said: “As a company dedicated to breaking down communication barriers, this is a cause that is incredibly close to our hearts.

“The energy, determination and dedication throughout May was fantastic. Raising awareness for the dual sensory loss faced by those with Usher syndrome resonates deeply with our mission of enabling communication and fostering understanding every day of the year.”

Lloyd Farrow, UK Sales and Marketing Director at LanguageLine, who also completed the challenge, added: “I am incredibly proud of the togetherness and commitment shown by the team during this challenge. Whether on bikes or on foot, seeing everyone push themselves for such a vital cause was inspiring. We know these funds will make a real difference to the incredible work Cure Usher Syndrome does.”

LanguageLine Solutions has pledged its ongoing support to Cure Usher Syndrome for the remainder of 2026, with further regional fundraising projects and awareness initiatives planned.

The community can still support the campaign by donating via the team’s JustGiving page: https://www.justgiving.com/page/languagelinesolutionsuk?utm_medium=FR&utm_source=CL

 

Helen Greaney
Helen Greaney
I'm a journalist with more than 18 years' experience on local, regional and national newspapers, as well as PR and digital marketing. Crime and the courts is my specialist area but I'm also keen to hear your stories concerning Manchester and the greater North West region.
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